change of scene (guest room bed)
change of scene (guest room bed)

Here I (still) am. It’s getting surreal, isn’t it?

This is what happened this week.

  • I had an epidural injection, hoping that it would cut down on the inflammation and give me some pain relief. I was nervous about it. But the procedure itself was not traumatic. The bad news is that it really didn’t give me any relief, either immediately or in subsequent days. So that was disappointing. To say the least.
  • I escalated the pain medications to even higher intensities. The result was about 4-5 hours of total pain relief, and about 2-3 days of complete CRAZY. I mean, I lost my mind. It really did a number on me. Like out of control crying, and a kind of paranoid panic and fear. I felt like I was disappearing. Dissolving. Maybe dying. I was an extremely unhappy little camper.
  • I stopped taking the heavy-duty pain meds.
  • The pain is worse. But I don’t care. I have my mind back.
  • I went for a neurosurgery consult. Because of the size and location of the ruptured disc, surgery is recommended to remove it, rather than waiting the 6 months for the disc material to re-absorb into my body. Mostly because of the profound weakness I am having in my arm. Nerve damage, if left too long, can be difficult or impossible to reverse, and this is my dominant arm/hand.
  • I’m going for another appointment next Thursday and hopefully will then be put on a schedule for surgery.
  • I am ready for this.

This has been an incredible experience, really. It is teaching me so much about patience. About understanding who I am aside from what I DO. It has taught me what it really means to conserve energy. The smallest things take so much energy; even lying on the back porch talking to friends wiped me out. I’m still learning.

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gift from a friend

I’m taking it as a gift to be able to read, to meditate, to sleep a lot. (a LOT) I love it when my friends come and lie down next to me and we just look at the ceiling and talk. It’s very comforting. But I can only take about one visit a day and it has to be very… low key.

When my mind is working, I can still write.

I have had pretty much no appetite. I think because I am burning about zero calories per day.  I’ve lost weight. My muscles are thin and noodley. I think my muscle mass has pretty much left the building. I try to be my own home care physical therapist and take myself through the exercises I do with people who are in bed all day. I’m not sure if it’s helping or not.

Those goals I had — tomorrow night is the Grotto Litcrawl reading. It’s still up in the air. I’m going to wait until the last minute to decide. But there’s a BART strike. These events are notoriously crowded and intense. Energy wise, it just might be too much.

Sadly, the trip to Mexico is off. It’s disappointing. What can I say? There will be other chances out there. I’m tripping around my own private Mexico these days, wandering around inside my head.

I know beyond a doubt that this experience is changing me. It’s one of the most challenging things that has ever happened to me, but it is not the worst one by far.  I’m learning a lot. In this small space, I am growing.

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Still life: bedside table

 

 

 

 

 

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