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Another Chronic Disease, O Boy June 17, 2014

Five years into being diagnosed with type II diabetes, I finally felt like I had come to some sort of peaceful relationship with it. I felt like I was managing the best I could, and was really pleased late last year when my endocrinologist decided to discontinue my oral medications. I hadn’t even been considering that as a goal, so when she suggested it, I was both surprised and happy.  She said I was doing great. YAY ME!

I was interviewed (and photographed) by Diabetes Health Monitor magazine (a staple in endocrinologist offices everywhere!) and feeling pretty darned good about it all.

Then, a couple of months ago, things started changing. My blood sugars started bumping up. Then they bumped some more. They went higher than I’d ever seen before. I panicked. I called my endocrinologist and begged her to let me resume the medications.  She said okay, and resumed my lowest dose. Sigh.

Then my weight started inching up at a steady rate, despite my doing basically nothing different than I had in the past five years. Now, I’ve been doing Weight Watchers for a long time. And I’ve learned that when I see a surprise gain at the scale, there’s always been a reason. An indulgent weekend. A sedentary retreat. Any of those things. But I’ve always easily been able to right the ship, and come back on course within a very short time.

This time, not so much. I mean, not at all. That in spite of all my best efforts, the ship was not righting. Every few days I’d step on the scale, and every time, it was higher than the time before.

I was starting to freak out. I was starting to dread my WW meetings (which I LOVE) for fear of being called out as fraudulent, bogus, the works.  I was getting frantic that my clothes were getting to be terribly ill-fitting (or non-fitting). My torso was starting to resemble that of a 2nd trimester pregnancy. And I wanted to sleep, like, ALL THE TIME.

What the hell!

For a while, I was in silent paralysis. I couldn’t discuss it or deal with it at all, I was so freaked out. But then I called my doctor(s) who recommended thyroid testing. (and: lo and behold, thyroid problems can cause out of control blood glucose!) An ultrasound revealed an enlarged thyroid. Next step: blood tests. I had the tests last week and this week, while on vacation with my family, I received emails from both doctors. Normal TSH levels are .5-5, and mine is 9. Bingo.

Diagnosis:  hypothyroiditis, or Hashimoto’s disease. Then I nodded. I had about 90% of the symptoms. Weight gain. Puffy face. Fatigue. Brittle hair and nails. Memory issues. Joint pain. Weakness. Vision problems.

Wonderful.

Sigh.

Well, damn.

I’m trying not to be all WHY ME? about this, but damn. Come ON. Okay. So what do I do. I start taking thyroid supplements. I start figuring out how to manage THIS chronic disease.

Part of me is really, really pissed off. But part of me is relieved. That it’s not worse. (it can always be worse, right?) And that this condition has a treatment. For which I am very grateful. I can’t wait for it to start WORKING! (this could take weeks–>months)

As I did when I first started this blog, and basically with every time I’ve every struggled, I know that reaching out with the struggle is better than struggling alone.  I know that finding community and support is better than flailing around alone.

Even thinking about writing this post has made me feel better.

 

Goodbye (sort of), Foodie McBody June 6, 2014

Foodie McBody

Foodie McBody

I just did a little thing that felt like such a BIG thing. I changed my Twitter handle, which has been @foodiemcbody forever. But for the last six months or a year I’ve felt like so much MORE than Foodie McBody. Many people I interact with now, in the writing world and beyond, don’t recognize or know Foodie.

It makes me feel really emotional to make this change. I first took on the name Foodie McBody as an anonymous name when I started this blog. Because I was ashamed of who I was. I was diabetic and overweight and unfit and desperate. I wanted to reach out for community and help, but I was embarrassed to be in the world as ME, Susan Ito. And that’s how Foodie came about.

When I started feeling better about myself, I shed that anonymity. For a long time I was really proud to be Foodie McBody. And I still am. But I’m more than that now. I’m a writer, a memoirist, a physical therapist, a teacher. Sometimes those selves fit with Foodie, and sometimes they don’t.

Last weekend I took a fabulous food-writing class at the San Francisco Writers’ Grotto. We were visited by guest speaker Virginia Miller, who blogs over at The Perfect Spot and also writes for Zagat. (!) I realized in that moment that FoodFoodBodyBody has been and is a food blog. And the writing that I did that day could live here. It was a huge sigh of happiness, the recognition that I could integrate these parts of myself.

For a long time I believed that my fitness stole my writing, and then that my writing could steal my fitness. All of it takes time, after all. Following my injury and surgery in the fall, I’ve definitely been more in the writing world. Trying to find that balance again. But I have deep love for the Foodie McBody part of myself, and deep love for my writing life. @thesusanito is an attempt to bring it all together in one self. I hope those of you who met me as Foodie will continue to be my wonderful healthy community, and those who never knew Foodie will learn about who that part of me is/was.

Did you ever feel like your identity was fragmented? What have you done to bring it all together?

 

 

Photo Shoot (Me) January 10, 2014

silly shot with Junior & Juniorette

silly shot with Junior & Juniorette (photo credit: Laura Duldner)

About a month ago, I got an email from someone at a diabetes publication, saying they’d found my blog and wanted to interview me. Yay! I like doing interviews. I was feeling good about my 5-year (!) healthaversary coming up, and it felt great to commemorate it like this. Five years!

The phone interview was fun. I blathered on. The writer who was interviewing me asked a lot about advice I’d give someone who was newly diagnosed. I realized the stuff that helped me then is the stuff that continues to help me now; i.e.. small changes. That is why Weight Watchers, Couch to 5k , #wycwcy (What-You-Can-When-You-Can) and other small, gradual steps have made all the difference, both at the beginning and on an ongoing basis. In many ways, I am starting from the beginning again.

After the interview, the writer said they could find some pictures here from my blog, or I could send some. Then a few days later I got an email saying that they’d like to “send a photographer.” SEND a photographer? Here?

Yes. And then last week I heard from the photographer herself. I had NO IDEA what big-deal photos she had taken (look here and have a heart attack like I did). She informed me that I was going to be on the COVER of the magazine and did I have a hair stylist? A makeup person? (#faint) I hurriedly went to check out this magazine and saw… 40 million readers… and the people on the cover? Gulp. Looked to be about twenty years old.

It threw me into a tizzy of anxiety, nerves, wanting to eat Everything In Sight, and just have a general meltdown.

Monday came. My hair stylist (aka my regular person who sweetly offered to come to my house before work) and my Makeup Person (friend of mine, who I had a vague idea “did makeup” but again had no clue what a pro she is!) arrived. I threw every piece of clothing I owned onto my bed in a fit of despair and I-Have-NOTHING-To-Wear!!

The hair blowout was fine. I was used to that. But then… the makeup… OMG.

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trying to be cool as a cucumber

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a bit beyond my usual naked face + Burts Bees tinted chapstick

The photographer arrived early, to “scout out” the house and surroundings for suitable backdrops. She decided on the front porch and “yard” (it’s more of an overgrown jungle). She got her equipment set up while I got my Face on. It took like 90 minutes which was fascinating and also kind of overwhelming. I felt like a painter’s canvas! But the end result was the most natural makeup I’ve ever worn and I still felt pretty much like me. Whew.

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me + Junior, and sans glasses

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She’s not messin around. So… I guess they didn’t like the Instagram selfie I sent in?

We took about a gazillion shots on the front porch and in the yard. Many outfit changes. Sweaters. Scarves. Running clothes. Medals. No medals. Rocky shot! I have-to-pee shot! (apparently this “elongates” the body- who knew? one could look so svelte when waiting in line at Portopotties?) We even went up to the park nearby (where I usually run) and I did some fake-running while she photographed me from her belly on the very edge of the trail. I pretty much had to run OVER her body while she exhorted me to “Keep coming at me, at me, at me!!” She had to do a costume change herself when we got back to to the house, so encrusted she was in trail stuff.

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She really worked for her money that day!

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Here she demonstrates the “have to pee” pose. Very elongated!

It turned out to be, after all, a lot more fun and a lot less stressful than I anticipated. The stress happened before and… after.

It was pretty trippy to do this. It messed with my head in various ways. Of all the magazines to be on the cover of, I was pretty proud and happy to be on a diabetes health magazine. (the only one I could ever hope for is to be on the cover of THIS magazine) I loved doing the interview. But the focus on my physical appearance for hours on end was just unnerving. I’m not used to it, and it just made me all discombobulated. I got really unbalanced. I sort of lost it a little. I was anxious and moody and jumpy and weepy. I found myself thinking crazy thoughts like, I hope they PhotoShop me. (even though I am so against that kind of thing!)

Going for a run-walk near the beach brought me back to myself yesterday. As did returning to a beginning meditation class this week. This is tricky stuff, y’all…

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running the next day

 

My 5th Healthaversary is Coming: Hot Chocolate 5k with me! December 15, 2013

hot-chocolate-logoEvery January, I reflect back on January 2009, when I first started this blog. I think about how I felt back then. Scared, unhealthy, hopeless. And how far I’ve come. Even with this recent injury, I always knew that I had a core of well being inside that wasn’t going to go away even if I couldn’t do much.

This coming January will be my 5th healthaversary. Five years! And I’m going to celebrate in two ways. One, I’m going to participate in the Hot Chocolate 5k on January 12th in San Francisco. I would LOVE to have as many friends doing it with me. A hot chocolate party! It comes in both 5k and 15k distances. And the “swag bag” is crazy awesome – it’s actually a fleece jacket! What!

2013-HC-this-is-your-goodie-bag_WITH-sizing-chartI’ll also be hosting my traditional walk-to-the-labyrinth and brunch at another time, but I realllly wanted to do something “5-ish” for this special five year commemoration. After the ordeal I went through this fall, I am more grateful than ever for my health. This will be the first 5k since my injury. I am hopeful and optimistic that I will be able to complete the 5k, most likely walking. That pesky hip injury I was dealing with BEFORE my ruptured disc? It’s talking to me again (sigh).

So please please please sign up! 15k or 5k, your choice. You can run like a gazelle or waddle like a wombat (that’ll be me). It’s probably going to be chillyish but we will have some cozy fleece! And hot cocoa! It will be a big, beautiful, Foodie McBody Party. No running necessary! (but it’s certainly allowed and encouraged if you like running)

PRICES ARE GOING UP DECEMBER 30th so please take advantage of the early pricing. If you use the code FOODFOODMUG, you will also get a free hot chocolatey mug on race day. Yay swag!

PRP-Snack-Tray

And…. Ta-da!! As an official Hot Chocolate Blogger, I have been authorized to give away one FREE RACE REGISTRATION!

This has been a really amazing five years. The most challenging, exciting, incredible five years of my life. I’m ready to celebrate.  Join me!

If you want a chance to be the recipient of this free registration, leave me a comment here below and tell me FIVE THINGS that keep you healthy! Also, follow the Hot Chocolate 15/5k on Twitter and Facebook to get all the sweet details.

And the winner of the race registration is… JULES!! Congrats, Jules, I’ll be sending you your registration code. Can’t wait to see you (and everyone else!) out there on January 12th!

HCSANFRANCISCO500X500

 

Dehydration is the Devil! October 22, 2013

Filed under: diabetes,health,hospital,injury,lessons learned,pain,struggle — Susan @ 6:30 pm

free-terrible-devil-wallpaper-wallpaper_422_86164That’s a direct quote from Junior. Both of us have had a lot of miserable experience with dehydration. This used to happen with me quite a bit with longer races and it was BRUTAL. Like HERE. But somehow, I did not put all the pieces together this last week and realize that it was the same exact devil. Loss of appetite, nausea, vomiting, sudden weight loss (I was pretty much losing a pound a day and was about 10 lbs down from 2 weeks ago), weakness, just FEELING LIKE DEATH. But since I was already feeling pretty deathish due to the bedrest and neck pain, it was hard to separate it out. It all felt like a version of the same thing. I thought I was feeling bad from various painkillers. I didn’t know which end was up.

But I remember how it used to be after races. I would be literally feeling like death, and then all I needed was fluid, electrolytes, salt. Chicken soup could do wonders and it was like a miracle had occurred. Like putting a dried out old sponge into water, and soak soak soak — voila.

That’s how I feel today. It’s a miracle! I’m ALIVE!

I’m back to my “baseline” which is: fairly OK lying down, more pain when I get up, but overall alert and feeling a lot, lot, lot better. A LOT BETTER! I actually WANTED and ATE a panini sandwich that Junior made for me and it was the most delicious thing ever. I’m on the way back.

It’s amazing what 12 hours of sleep, three liters of IV fluid and some antibiotics (for my urinary tract infection) can do.

 

Exposed, Again October 8, 2013

exposed-2

When I realized that this week was the 4th year anniversary of the Exposed Movement, originally started by Mish at Eating Journey, my initial reaction was to scoff and whimper, “No way.” I remember feeling pretty great about exposing myself when I joined the movement in 2010. I had been working on my health and fitness for about a year, and I was feeling confident.

This year, I could not be in a more different place. This week I have been debilitated by crazy, relentless pain, and the simple acts of showering or trying to eat a 10-minute meal sitting up have been excruciating.

But as I began to read – and be inspired and moved by- other “anniversary” exposed posts – Carla and Karen and Emily, Jules, Kate and Roni – I felt like, the biggest part of Exposing oneself is in the showing up. As is. And of celebrating what there is to celebrate.

This week, I’m celebrating the fact that I can still find a comfortable position in which to write (on my back, laptop propped on knees). When my writing is taken away, it’s all over. But I’m also contemplating where I’ve been SINCE that first Exposed post back in 2010.

2010

Since then, I’ve:

  • completed two triathlons
  • managed to stay within 5 lbs of my goal weight, and remained on staff at Weight Watchers
  • kept on my committed path of trying to be as healthy and fit as I am able
  • been able to discontinue my diabetes medication completely (although temporarily back on due to all the anti-inflammatories I’m on)

These are all big victories to me. The greatest victory I see is that I have not given up, not taken a U-turn or stopped caring or acting in behalf of my health. I might not be the unstoppable, badass triathlete I was in 2011, but that’s okay.  Here’s a picture I took this afternoon.

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This arm-over-the-head position is the only one that is not excruciating when I’m upright these days.

I’m still here.

What would it mean – what would it look like and feel like – to expose yourself?

 

The Week In Which I Cried A River, then Found Hope July 26, 2013

hip

These are my actual hips.

So it’s been a rough couple of months out here. I’ve basically been having nonstop right hip pain ever since the Oakland half marathon, and it’s been bumming me out big time. The hardest part has been not knowing for sure what was wrong – was it a muscle pull? Bursitis? For a month or so I thought it might be due to some pretty big fibroids I have. But although they are clinically classified as “huge,” they have not grown or changed in size since 2009. So my gynecologist was not ready to do anything drastic until I got a complete workup from an orthopedist.

I finally went and had that evaluation on Wednesday. First he did a physical exam. He said he was pretty sure that I did have hip arthritis, and also based on my symptoms, pretty sure I am going to need a total hip replacement.

Thud.

(that was my heart falling out of my body onto the floor)

I had been sort of bracing myself for this possibility. I tried to recover myself quickly and then I asked, “But what about running?” I think I had this picture in my head, like, as soon as I can just get FIXED, then I can carry on with all my usual stuff, that has, been by the way, on hold for a long time. He said, you know, people are going to do what they’re going to do, but we really do not recommend it. Especially for a young person, we want that new joint to last a long time, and the more you use it, the faster it will wear out.

And then I started crying. And pretty much didn’t stop for about eight hours, until I passed out from sobbing. I had to go to my Weight Watchers meeting. I drove past the site of See Jane Run and totally LOST MY SHIT.

I thought, that was my last race. Of my entire life. I thought, I was going to do that half marathon. And now I never will. I was choke-sobbing all the way to the parking lot of my WW center. I tried to pull myself together. A few of my observant members noticed that I looked like hell. They asked me if I was having a bad day. I really could not even talk about it for fear I would start hysterically wailing right there. I went and hid in a storage closet until the meeting was supposed to start, and miraculously I got through it more or less. It was frankly a relief to talk about SALADS for half an hour.

I got back in my car. The waterworks resumed. I had this image of coming into the house and seeing my beloved medal rack with all my race bling hanging there. I was wailing as if the world was over. Part of my world WAS over. I went home and crawled into bed. I felt like I was seventeen years old and the love of my life was breaking up with me. The love that I had never thought I’d have. Who ignored me my whole life and then finally turned their attention to me and said I was worthy.

Mr. McBody came in and held me as I carried on. I told him that he was not allowed to utter the words “swim” or “bike” until I deemed it acceptable. It was like when we lost our first child. People kept saying I would go on to have other wonderful children. Which turned out to be TRUE, but at that moment it was the last thing on earth I was able to hear. So, I might go on to have a wonderful biking or swimming life, but at that moment I needed to mourn the running.

Sometime during all this melee, I received a text from my dear friend Carla. She texted, Have you seen hiprunner.com? They have an e-Book….

my new community

my new community

I took a look at the site on Thursday, when my head was throbbing and my eyelids looked like giant waterbeds. I made some sort of wild noise of disbelief and joy as I read about other runners who had undergone hip replacements and who were… RUNNING! WHAT!?!?!?!?!? I immediately posted a comment of OMG OMG OMG are you kidding me?! I received a very warm welcome and an invitation to join the Hip Runners Club. Did I want to participate? HELL YES.

So. I have dried my tears. I am dusting myself off and looking toward the next whatever-it-is. I don’t know when this will actually happen because I need to find myself a new orthopedist (the one I saw this week is retiring) and I am going to find one who believes that some form of running post-op will be okay.

And I’m gonna order myself this T-shirt. Game on.

Bring it on.

Bring it on.

 

 
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